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Gold Ribbon Hero Noah L

Gold Ribbon Hero Noah L

“Reason this person is a Gold Ribbon Hero: Noah Luce won’t be stopped. He is 3 years old diagnosed with clear cell sarcoma of the kidney on Fathers Day. Going into the emergency room that day little did we know we would never go back home. Noahs life changed in hours and hasn’t given up in the slightest. His personality pours into the hearts of everyone he meets. He encourages his new friends on the pediatric cancer unit everyday to smile play laugh and get up and get going. After every stay in the hospital he gives away his balloons to his new  friends is concerned when he hears the cries in the bed next to us and insists on checking on them. Daily he says to me, mommy I’m not sick!  He is not sick we just have one large jaw breaker in his tummy we want to get out I tell him. He continues to push me everyday to laugh tickle and jump like crazy no matter the situation. Noah is a mighty superhero on a mission of laughter to brighten the darkest of days.” – Krystal C.

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Gold Ribbon Hero Jessica B

“Reason this person is a Gold Ribbon Hero: This is my aunt. Her five year old son(pictured in the photo) has brain cancer and epilepsy. She somehow manages to get to all his appointments and get him to all his therapy sessions on top of raising three other kids. I nominate her cause I know that I wouldn’t be able to do this like her. She really is a hero for her child.” – Scott G.

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Gold Ribbon Hero Sherri V

“Reason this person is a Gold Ribbon Hero: Sherri Viccarone lost her daughter to brain cancer when she was 16 years old in 1996. Since that time, Sherri has inspired our community to give back in Misty’s memory. It started simple, as a teddy bear collection for the children’s hospital at Christmas time, but has grown into so much more. In 2010, Misty’s Wish became a nonprofit organization dedicated to helping children and families with life threatening illnesses. Through Misty’s Wish, Sherri runs fundraisers to support a children’s hospice program, supports the child life department of multiple hospitals, collects gifts for children at Christmas and so much more. She’s dedicated her life to helping families get through the toughest challenge they could face and bravely faces her own grief in order to serve families in similar situations. You can find her and Misty’s Wish volunteers making and serving meals at the children’s hospital or Ronald McDonald house and connecting with families often. At the center of everything she does, Sherri is spreading the message of childhood cancer awareness and keeping her daughter’s memory alive by helping other families like her own. More about Misty’s Wish can be found at www.mistyswish.org” – Shannon V.09162015

 

Gold Ribbon Hero Julian R

“Reason this person is a Gold Ribbon Hero: Julian fought the ugly monster for 4 years and he earned his wings on 8-8-15.   Even though he was in pain he always gave us a smile so that we wouldn’t see his pain. He was selfless everyday. So brave. …always.” – Leonor C.

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Gold Ribbon Hero Dustin C

“Reason this person is a Gold Ribbon Hero: Dustin is my hero because I see him overcome so much… 4 yrs old.. non-verbal, Autism, and now, leukemia.  He bravely fights his battle with a smile on his face and without words, encourages me to stay strong as well. I’m amazed by him daily and couldn’t be more proud of him!!!” – Heather C.

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Gold Ribbon Hero Michael C

“Reason this person is a Gold Ribbon Hero: After hearing a little girl cry in the hospital while he himself was going through treatment for Glioblastoma, Michael came up with the idea of Michael’s Meanies. www.michaelsmeanies.com
Since that time July 2013, his idea has been made into stress balls for kids with cancer to use during treatment to take out their frustrations. Currently they have been sent to 220 hospitals in 15 countries throughout the world.” – Linda C.

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Gold Ribbon Hero Skyla R

“Reason this person is a Gold Ribbon Hero: Well Skyla has DBA a rare blood disorder  and has been tough through the whole thing. Skyla is going through a bone marrow transplant soon and she only has a 20% of living.” – Katie H.

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Gold Ribbon Hero Julian R

“Reason this person is a Gold Ribbon Hero: Julian is 10 years old..and has been fighting his war again neuroblastoma for 4 years. He is always smiling and giving kisses. He is such a brave warrior and he never let’s it get him down. I think he deserves the gold ribbon hero because he is a hero. .he is my hero!!” – Tammy T.

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More about Childhood Neuroblastoma Cancers:

Learn More About the Different Types of Childhood Cancers:

Children Diagnosed with Cancer: Financial and Insurance Issues

Financial and Insurance Issues

health insurance benefits floridaWhen your child has just been diagnosed with cancer, your top priority is ensuring that your child gets immediate access to the treatment protocols he or she needs to fight back against this terrible disease.  The very last thing you want to worry about is money: whether you can afford the very best care and what it will mean for the financial future of your family.  However, taking the time to consider the financial implications of childhood cancer and developing a strategy to approach them will go a long way to ensuring a happy, healthy future for everyone in your family.

At the ACCO, our goal is to support families facing a cancer diagnosis to ensure that their time and energy can be devoted to helping their child get the best possible care and treatment.  Our extensive network of local groups provides on-the-ground assistance to families, including financial support and advice, help with transportation and daycare, shopping and meal-planning, and all the many little things that become so difficult when a child is in treatment.  For help finding a local group near you, we encourage you to visit www.acco.org.

How to cover the expenses of cancer treatment?    

The first critical step in approaching financial planning for cancer treatment is to determine whether you have private insurance and if so, what parts of the treatment are covered and by how much, and what requires advanced authorization for coverage.  The paperwork can be daunting, especially at a time when you are already trying to cope with the shock, disbelief, pain, denial, and sorrow that comes from the initial diagnosis.  However, there are resources available to help you, including the hospital billing office, where administrators specialize in helping families navigate through the complicated world of insurance payments, co-pays, authorizations, and other minutia associated with insurance coverage.

If you do not currently have health insurance, there are still a variety of options to ensure financial coverage for childhood cancer treatments, including signing up for health insurance through your employer if offered, purchasing a private health insurance plan, signing up for a health plan offered through state marketplaces (developed under the Affordable Care Act), or applying for Medicaid or other low-income health care assistance.  Some of the factors that you may consider while comparing different plans include:

  • The benefits and treatment options covered by the health insurance plan
  • The various costs that are linked with the health plan such as co-insurance if any, co-pays, deductibles, and premiums
  • Whether your child’s hospital and physicians are included the network of hospitals covered by the health plan
  • Whether the drugs and treatment protocols required to treat your child are covered in the health plan

You may also consider speaking directly to the hospital billing staff about coverage options and any discounts available to your family to help mitigate the high cost of cancer treatments.

In addition to planning for the cost of treatment, there are a variety of additional, and potentially unanticipated costs that can easily accumulate unexpectedly during this difficult time.  For example, you may need to plan accommodations for you and other family members when your child is undergoing his or her treatment, transportation costs, and child care for other children in the family.  One parent may even have to leave his or her job or take unpaid leave due to the child’s treatment schedule, resulting in the potential loss of much-needed income.  While it can be difficult to anticipate these auxiliary costs of fighting cancer treatment, taking the time to plan for the unexpected and relying on the support and advice of families who have been there as well can help mitigate the potentially high costs of helping your child fight–and win–the battle against childhood cancer.

For more information about the American Childhood Cancer Organization and how we can help, call 855.858.2226 or visit:

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Gold Ribbon Hero Jackson P

“Reason this person is a Gold Ribbon Hero: Jackson Miles Patterson was born on December 1, 2013. Life for Jackson and his family made a sudden and unwanted change in November of 2014 when he was diagnosed with a Rhabdoid tumor, a rare and aggressive form of childhood cancer. However, Jackson was a fighter; he fought hard to defy the overwhelming odds against him. He was given chemotherapy to shrink the tumor on his abdomen and it was removed in February of 2015. Jackson displayed great strength during his fight, inspiring all of the members of “Team Jackson” who rallied to his side. He loved popcorn and despicable me. He danced often and loved his two older siblings. At age 1, Jackson passed away July 23, 2015 at his home surrounded by his loving family. He is the definition of a hero. He kept his bright personality till the very end!” – Annabel P

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