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Gold Ribbon Hero Kamryn S.

Gold Ribbon Hero Kamryn S.

“Reason this person is a Gold Ribbon Hero: Kamryn is a cancer survivor. Easter weekend of 2014 she was diagnosed with a wilms tumor (kidney). They opened her up to remove the kidney and found it had ruptured so they were on able to remove the kidney at that time. She then had chemo for 6 weeks. After that round of chemo she went to Sloan Kettering in NYC to have the kidney and tumor removed. She then went through more chemo and radiation. Kamryn was a tough girl through the whole process and always kept smiling and making other laugh. She is now cancer free. They do test every 3 months to make sure she is fine.

Last month a friends of her moms sister was diagnosed with breast cancer so Kamryn wrote her a letter telling her she can beat cancer too.

She is our hero.” – Pamela M.

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Gold Ribbon Hero Aracely G.

“Reason this person is a Gold Ribbon Hero: Aracely has been battling Pineoblastoma since June 1st 2015. She has currently been hospitalized for 171 days. She has endured 3 brain surgeries and 5 rounds of chemo. She is preparing to start radiation next month. We are so proud of her strength and we are grateful to be her family and stand by her side. She continues to amaze us.” – Kimberly G.

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Gold Ribbon Hero Ryder W.

“Reason this person is a Gold Ribbon Hero: He was diagnosed with Stage III kidney cancer on 12/19/2015.  He has survived radiation, chemotherapy, and removal of his kidney.  Through it all he showed us what the face of courage looks like; what the face of bravery looks like.  And he did it all with a smile on his face for everyone.  My grandson is my inspiration and hero.” – Nancy W.

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Gold Ribbon Hero Alicia G.

“Reason this person is a Gold Ribbon Hero: Why I’m nominating my daughter. In 2013 she was diagnosed with AML at the age of 13. After we found out of course we were devastated. She’s my baby I wished it was me not her. The doctors told us about a studied chemo that they wanted to try so we did. After she started chemo she contacted legionella which put her in the PICU. She was on life support for 3 months. We was not sure if she was gonna make it. She was fighting to diseases. Which after 139 days in the hospital she was our miracle child, she beat both and u got to bring her home cancer free. Then she relapsed thanksgiving last year 2014, but with the help of her older brother Jeremy she is once more cancer free. See she had to have a bone marrow transplant in February of this year as her brother was her donor. I am proud of both my babies, they are both my hero’s.” – Brenda F.

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Gold Ribbon Hero Kennedy G.

“Reason this person is a Gold Ribbon Hero: Kennedy Grimmer is the bravest 9 yr old boy during his treatment. He is funny, silly, and charming each and every time he goes to the hospital for treatment. He is managing his limitations with grace and tenacity. I couldn’t be more proud of him, my son.” – Donna G.

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Gold Ribbon Hero Yanuel B.

“Reason this person is a Gold Ribbon Hero: He’s battling with ALL during 2 years!!
He have a 4 years old!!!” – Kenia B.

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Gold Ribbon Hero Stephen F.

“Reason this person is a Gold Ribbon Hero: At 33 weeks SJ was born not breathing for 8 whole minutes! He overcame pyoric stenosis, has been fighting congenital heart defect, apnea, and airway defect. June 2015 we got the words no parent wants to hear he has ph positive acute lymphoblastic leukemia. We are taking chemo and he has had one of the holes in his heart repaired. Through all of this SJ is such a love he smiles non stop, his eyes can melt the young and old and we are spreading awareness all over our area that kids get cancer too!” – Jamie E.

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STAR Act Needs Your Help

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Today, the ACCO desperately needs your help.

Today, we are reaching out to everyone in the childhood cancer community across the country and asking you to take action—because today, just one small action could make a very big difference in the life of a child with cancer.

Yesterday, we received the very exciting news that that Childhood Cancer STAR Act (Survivorship, Treatment, Access and Research (H.R. 3381/S. 1883) added the 100th Cosponsor in the U.S. House of Representatives and the 12th Cosponsor in U.S. Senate. Why is this news so exciting? Because it means that support for this critical piece of potential legislation is continuing to grow and gain momentum every day.  At ACCO, we are working to keep this momentum building, to convince members of Congress that this bill must become law, that the future of children fighting childhood cancer are depending on them to ensure that research into new and better treatments can continue. But we need you to join our voice! We invite you to please add your voice to ours in encouraging every member of Congress to support this vital bill and make it law!

The STAR Act is currently sitting in committee and will remain there until it garners enough support to begin the process of moving it through committee, then up to a vote by the House and Senate, and then onto the President’s desk to become law. Unfortunately, 112 Cosponsors is just not enough to make this happen. In particular, we need more support of Republicans. We currently have 26 House Republicans and 3 Senate Republicans as cosponsors, but we believe that we need at least 50 Republicans in the House for this bill to move onto the next stage of the complex law-making process. We encourage you to help convince Republicans in the U.S. Congress that the children of this country need this bill to become law to help eliminate the threat posed to them by childhood cancer, the primary disease-related cause of death for children under 14 in the United States today.

We ask you to contact Republicans in Congress and ask them to cosponsor the STAR Act today! 

At the end of this post, you will find a list of Republicans in the Senate and the House whom we would like to target for their support, along with the email address of their office staffer. We ask you to send them an email urging them to support this critical bill. Remind them that this important childhood cancer legislation gives hope to children currently undergoing treatment, to survivors of childhood cancer suffering long-term health effects of today’s toxic treatments, and to the 1 in 285 children under the age of 20 who will be diagnosed with cancer next year and every year until a cure is found. Inform them that without sufficient funding into advanced treatment alternatives and clinical trials, children with some forms of cancer will continue to face unacceptably high rates of mortality and all survivors will continue to struggle with long-term, significant threats to their health as a result of their cancer treatment. Implore them to add their support to the growing list of Congressmen and women who understand the critical nature of this potential legislation and the dire need to ensure adequate funding so research and quality care can continue.

What is the STAR Act and why is it so important?

Nearly all children who receive a diagnosis of childhood cancer—90% in fact—rely on government-funded clinical trials for treatment, trials supported by NCI’s Children’s Oncology Group. In fact, because developing treatments specific to each unique form of childhood cancer is relatively unprofitable for private pharmaceutical companies, the NCI funds nearly all research into new treatments for childhood cancer. Unfortunately, dramatic funding cuts have impaired the NCI’s ability to promote critical research efforts and support desperately-needed clinical trials.

Part of the ACCO’s mission is to promote the on-going efforts of the NCI and the Children’s Oncology Group. We helped write the STAR Act to ensure that these vital organizations receive the funding they need to continue the critical and promising work they have started. The Star Act is an important first step in addressing the critical funding gap that currently undermines the potential for much-needed advances in treatment protocols for all forms of childhood cancer, as well as expanding and supporting data collection and research initiatives that play a critical role in the struggle to end childhood cancer forever.

If you have a personal connection to a Republican in the U.S. Congress, or if you simply believe in the importance of adding your voice to the growing chorus of people encouraging Congress to make this critical bill into law, we ask you to contact your Congressmen and women today and ask them to add their name to the growing list of cosponsors.  On behalf of the children fighting cancer today and those who will fight it tomorrow, we thank you for your help and support!

Senate      |       Staffer Email                    

Blunt, Roy (R-MO)  desiree_mowry@blunt.senate.gov

Cassidy, Bill (R-LA)  brenda_destro@cassidy.senate.gov

Collins, Susan (R-ME)  olivia_Kurtz@collins.senate.gov

Coats, Dan (D-IN)  casey_murphy@coats.senate.gov

Cornyn, John (R-TX)    beth_nelson@cornyn.senate.gov

Crapo, Mike (R-ID)  kellie_mcconnell@crapo.senate.gov

Fischer, Deb (R-NE)  liz_ruth@fischer.senate.gov

Gardner, Cory (R-CO)  alison_toal@gardner.senate.gov

Lankford, James (R-OK)  katherine_wheeler@lankford.senate.gov

Murkowski, Lisa (R-AK)  garrett_boyle@murkowski.senate.gov

Portman, Rob (R-OH)  sarah_johnson@portman.senate.gov

Scott, Tim (R-SC)  catherine_phillips@scott.senate.gov

Vitter, David (R-LA)  travis_johnson@vitter.senate.gov

 

House of Representatives  | Staffer Email

Vern Buchanan (R-FL)  katie.wise@mail.house.govJohn Culberson (R-TX)  catherine.knowles@mail.house.gov

Charles Dent  (R-PA)  andrea.uckele@mail.house.gov

Scott DesJarlais (R-TN)  richard.wilkins@mail.house.gov

Chris Gibson (R-NY)  rebecca.shaw@mail.house.gov

John Mica (R-FL)  brian.waldrip@mail.house.gov

Candice Miller (R-MI)  jeff.orzechowski@mail.house.gov

Erik Paulsen (R-MN)  matt.gallivan@mail.house.gov

Robert Pittenger (R-NC)  caroline.barbee@mail.house.gov

Bill Posey (R-FL)  christen.kapavik@mail.house.gov

David Reichert (R-WA)  lindsay.manson@mail.house.gov

Phil Roe (R-TN)  john.martin@mail.house.gov

Fred Upton (R-MI)  mark.ratner@mail.house.gov

Tim Walberg (R-MI)  evan.armstrong@mail.house.gov

Don Young (R-AK)  jesse.vonstein@mail.house.gov

Gold Ribbon Hero Kelsey M.

” Reason this person is a Gold Ribbon Hero: Kelsey was diagnosed with infantile fibrosarcoma on July 15, 2015. Since then she has gone through multiple treatments of chemotherapy every week, 2 surgeries, 9 different medications (not including the chemo meds), still goes to public school, and has never stopped smiling through all of it. Kelsey is the strongest 7 year old I know & has overcome more in the last few months than most do in a lifetime. She has managed to do all of this while still inspiring others & she keeps her big beautiful smile on her face. I am so proud of you Kelsey Brooke!” – Jennifer V.

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Gold Ribbon Hero Arvin N.

“Reason this person is a Gold Ribbon Hero: Arvin was diagnosed with cancer when he just turned 2 months old. He is turning 7 months old. He is the happiest baby I’ve ever known despite the battle he is going through. Keep fighting baby! My son, My hero!” – Nini N.

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