Meet Trey, an Atypical Teratoid Rhabdoid Tumor (ATRT) survivor!

“Trey attended his first day of soccer practice at daycare and came home with no appetite. He was completely exhausted. The look in his eyes is one I’ll never forget, it was like he wasn’t there. We were in complete denial” remembers Trey’s mother, Ebony. 

At two and a half years old, Trey walked into the emergency room able to recite his colors, ABC’s, and body parts. He was potty trained and did all of this with a tumor that covered the majority of his head. On March 7, 2023, Trey was rushed into emergency surgery to resect his brain tumor of which his surgeon had never seen in his 20 years of practice. Trey endured two brain resection surgeries, a stroke, seizure, chemotherapy, platelet and blood transfusions, stem cell treatments and proton radiation. He spent almost nine months inpatient. 

As of April 2024, Trey’s six-month post-treatment MRI showed no evidence of disease (NED) on his brain and spine! 

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